Cystic Fibrosis Foundation Slovenia
Encyclopedia
The Cystic Fibrosis Foundation from Slovenia (Slovene: Društvo za cistično fibrozo Slovenije) is a non-profit organization in Slovenia
, Europe. The foundation is a member of the European Cystic Fibrosis Society (ECFS) and Cystic Fibrosis Europe (CFE), a section of international CF organization Cystic Fibrosis Worldwide (CFW).
and their families to achieve the highest possible quality of life that contribute to a better and longer life of patients affected with cystic fibrosis. The society is intended to address and alleviate social distress and difficulties of people, providing assistance to people whose health or life is threatened, and the strengthening of public health.
One of goals is also to educate / inform the Slovenian people and general public about the CF and various aspects of life of patients affected with it.
Slovenia
Slovenia , officially the Republic of Slovenia , is a country in Central and Southeastern Europe touching the Alps and bordering the Mediterranean. Slovenia borders Italy to the west, Croatia to the south and east, Hungary to the northeast, and Austria to the north, and also has a small portion of...
, Europe. The foundation is a member of the European Cystic Fibrosis Society (ECFS) and Cystic Fibrosis Europe (CFE), a section of international CF organization Cystic Fibrosis Worldwide (CFW).
History
The foundation was established on 3 November 2009. Before it was a part of Association of pulmonary and allergic patients in Slovenia (Slovene: Društvo pljučnih in alergijskih bolnikov Slovenije)Goals
The purpose of association is organized to assist all patients affected with cystic fibrosisCystic fibrosis
Cystic fibrosis is a recessive genetic disease affecting most critically the lungs, and also the pancreas, liver, and intestine...
and their families to achieve the highest possible quality of life that contribute to a better and longer life of patients affected with cystic fibrosis. The society is intended to address and alleviate social distress and difficulties of people, providing assistance to people whose health or life is threatened, and the strengthening of public health.
One of goals is also to educate / inform the Slovenian people and general public about the CF and various aspects of life of patients affected with it.
The foundation's publications
All publications are in pdf format and they are in Slovene language.- Publication: Simpozium at Golnik Hospital 2009
- Compendium: CF 2009
- Poster Fighting CF in Europe
- Poster Whistle and Breathe!
- Facing CF
- First Steps in CF