The Stennis Foundation
Encyclopedia
The Stennis Foundation is a registered nonprofit organization based in the U.S. The Foundation is primarily a fundraising organization, raising money, and then sending it to various research projects. Currently, The Stennis Foundation supports research at Duke, Kennedy Krieger, and San Raffaele Institute in Milan, Italy.
According to their web site, The Stennis Foundation is committed to raising public awareness regarding the leukodystrophies
, and funds for related research. Their goal is to advance research through proper funding. Their mission statement is "One Step Closer to a Cure."
The Foundation's beginnings were inspired by Dr. Sam Stennis, a former optometrist in Amarillo, Texas, who, at age 47, was diagnosed with adult-onset Metachromatic leukodystrophy
.
According to their web site, The Stennis Foundation is committed to raising public awareness regarding the leukodystrophies
Leukodystrophy
Leukodystrophy refers to a group of disorders characterized by dysfunction of the white matter of the brain. The leukodystrophies are caused by imperfect growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fibers...
, and funds for related research. Their goal is to advance research through proper funding. Their mission statement is "One Step Closer to a Cure."
The Foundation's beginnings were inspired by Dr. Sam Stennis, a former optometrist in Amarillo, Texas, who, at age 47, was diagnosed with adult-onset Metachromatic leukodystrophy
Metachromatic leukodystrophy
Metachromatic leukodystrophy is a lysosomal storage disease which is commonly listed in the family of leukodystrophies. Leukodystrophies affect the growth and/or development of myelin, the fatty covering which acts as an insulator around nerve fibers throughout the central and peripheral nervous...
.
Conditions of interest
- LeukodystrophyLeukodystrophyLeukodystrophy refers to a group of disorders characterized by dysfunction of the white matter of the brain. The leukodystrophies are caused by imperfect growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fibers...
- Metachromatic leukodystrophyMetachromatic leukodystrophyMetachromatic leukodystrophy is a lysosomal storage disease which is commonly listed in the family of leukodystrophies. Leukodystrophies affect the growth and/or development of myelin, the fatty covering which acts as an insulator around nerve fibers throughout the central and peripheral nervous...
- AdrenoleukodystrophyAdrenoleukodystrophyAdrenoleukodystrophy is a rare, inherited disorder that leads to progressive brain damage, failure of the adrenal glands and eventually death. ALD is a disease in a group of genetic disorders called leukodystrophies, whose chief feature is damage to myelin...
- Krabbe's disease
- Alexander's disease
- Canavan diseaseCanavan diseaseCanavan disease, also called Canavan-Van Bogaert-Bertrand disease, aspartoacylase deficiency or aminoacylase 2 deficiency, is an autosomal recessive degenerative disorder that causes progressive damage to nerve cells in the brain. Canavan disease is also one of the most common degenerative...
- Pelizaeus-Merzbacher diseasePelizaeus-Merzbacher diseasePelizaeus–Merzbacher disease is a rare central nervous system disorder in which coordination, motor abilities, and intellectual function are delayed to variable extents.-Classification:...