The Canadian Organization for Rare Disorders (CORD) is a Canadian

Canada

Canada is a North American country consisting of ten provinces and three territories. Located in the northern part of the continent, it extends from the Atlantic Ocean in the east to the Pacific Ocean in the west, and northward into the Arctic Ocean...

 registered charity that is a network of organizations who represent people affected by rare diseases. CORD's purpose is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.

Overview

CORD represents the orphan disorders community in the development of Canadian Orphan Drug

Orphan drug

An orphan drug is a pharmaceutical agent that has been developed specifically to treat a rare medical condition, the condition itself being referred to as an orphan disease...

 Policy, including the proposed Expensive Drugs for Rare Disorders program within the National Pharmaceutical Strategy CORD is working to promote state-of-the-art Newborn Screening in all provinces and territories. CORD is working to ensure Canada's Clinical Trials Registry works effectively for those with rare disorders. CORD is committed to increasing access to genetic screening and genetic counseling for all rare disorders. Currently, Durhane Wong-Rieger

Durhane Wong-Rieger

Durhane Wong-Rieger is a Chinese-born, American-raised , Canadian with a Ph.D. in psychology. She is best known for her role as an advocate of patients who contracted diseases such as HIV and hepatitis C from tainted blood transfusions, in particular from the Health Management Associates...

 is the President of CORD.

Their national offices are located in Toronto

Toronto

Toronto is the provincial capital of Ontario and the largest city in Canada. It is located in Southern Ontario on the northwestern shore of Lake Ontario. A relatively modern city, Toronto's history dates back to the late-18th century, when its land was first purchased by the British monarchy from...

, Ontario

Ontario

Ontario is a province of Canada, located in east-central Canada. It is Canada's most populous province and second largest in total area. It is home to the nation's most populous city, Toronto, and the nation's capital, Ottawa....

, with an Alberta chapter located in Edmonton

Edmonton

Edmonton is the capital of the Canadian province of Alberta and is the province's second-largest city. Edmonton is located on the North Saskatchewan River and is the centre of the Edmonton Capital Region, which is surrounded by the central region of the province.The city and its census...

, Alberta

Alberta

Alberta is a province of Canada. It had an estimated population of 3.7 million in 2010 making it the most populous of Canada's three prairie provinces...

.

See also

• Rare diseases
• National Organization for Rare Disorders
  National Organization for Rare Disorders
  The National Organization for Rare Disorders is an American non-profit organization aiming to provide support individuals with rare diseases by advocating and funding research, education, and networking among service providers...
  
   American based organization
• European Organization for Rare Diseases
  European Organization for Rare Diseases
  The European Organization for Rare Diseases is a non-governmental patient-driven alliance of patient organizations and individuals active in the field of rare diseases, that promotes research on rare diseases and commercial development of orphan drugs. EURORDIS is a dedicated to improving the...
  
  
• Rare Disease Day
  Rare Disease Day
  Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families...
  
  

External links

• Official Website
• CORD Fan Page on Facebook
  Facebook
  Facebook is a social networking service and website launched in February 2004, operated and privately owned by Facebook, Inc. , Facebook has more than 800 million active users. Users must register before using the site, after which they may create a personal profile, add other users as...