List of cystic fibrosis organizations
Encyclopedia
The following organizations assist people with or do research into cystic fibrosis
, a hereditary disease affecting the lungs and digestive system, causing progressive disability and shitimes early death.
Cystic fibrosis
Cystic fibrosis is a recessive genetic disease affecting most critically the lungs, and also the pancreas, liver, and intestine...
, a hereditary disease affecting the lungs and digestive system, causing progressive disability and shitimes early death.
Australia
- Cystic Fibrosis Australia (CFA), an Australian national organization aimed at raising awareness and education of cystic fibrosis through advocacy and research
Europe
- Mukolife.dehttp://www.mukolife.de A german social network for the CF community where members can post blogs, ask questions, chat, maintain a profile, contact others and search members. It is created by the CF community for the CF community.
- Cystic Fibrosis TrustCystic Fibrosis TrustThe Cystic Fibrosis Trust, founded in 1964, is the United Kingdom’s only national charity dedicated to all aspects of cystic fibrosis . It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with cystic fibrosis.-Objectives:Its objectives are:*To...
, a UK charityCharitable organizationA charitable organization is a type of non-profit organization . It differs from other types of NPOs in that it centers on philanthropic goals A charitable organization is a type of non-profit organization (NPO). It differs from other types of NPOs in that it centers on philanthropic goals A...
providing research, information and care for people with cystic fibrosis - European Cystic Fibrosis Society (ECFS), a DenmarkDenmarkDenmark is a Scandinavian country in Northern Europe. The countries of Denmark and Greenland, as well as the Faroe Islands, constitute the Kingdom of Denmark . It is the southernmost of the Nordic countries, southwest of Sweden and south of Norway, and bordered to the south by Germany. Denmark...
-based organization of clinicians and scientists actively engaged in CF research, care and collaboration - Association Grégory Lemarchal, a FrenchFranceThe French Republic , The French Republic , The French Republic , (commonly known as France , is a unitary semi-presidential republic in Western Europe with several overseas territories and islands located on other continents and in the Indian, Pacific, and Atlantic oceans. Metropolitan France...
organization dedicated to information outreach and research for cystic fibrosis, named after the French singer and Star AcademyStar Academy FranceStar Academy was a French reality television show produced by the Dutch company Endemol, based on the Spanish format called Operación Triunfo. It consists of a contest of young singers. It spawned an equally successful show in Quebec called Star Académie. It was broadcast on TF1...
winner Grégory LemarchalGrégory LemarchalGrégory Jean-Paul Lemarchal was a French singer who rose to fame by winning the fourth series of the reality TV programme Star Academy France, broadcast on the TF1 television network.... - Nederlandse Cystic Fibrosis Stichting, a Dutch organization providing research, information and care for people and family with cystic fibrosis
- Chloe Cotton Trust Fund a U.K based foundation to help support families and their children with cystic fibrosis.
- Cystic Fibrosis Foundation SloveniaCystic Fibrosis Foundation SloveniaThe Cystic Fibrosis Foundation from Slovenia is a non-profit organization in Slovenia, Europe. The foundation is a member of the European Cystic Fibrosis Society and Cystic Fibrosis Europe , a section of international CF organization Cystic Fibrosis Worldwide .-History:The foundation was...
, a Slovenian association providing information and care for CF patiens and their families - Child Health InternationalChild Health InternationalChild Health International is a Winchester -based charity, with a proven record of success in improving the healthcare of children in Russia, Eastern Europe and a new project to help children with cystic fibrosis in India...
CHI, a UK based organization providing help especially in Eastern Europe, concentrating on low cost, sustainable solutions based on team work and family involvement.
North America
- CysticLife.orghttp://www.cysticlife.org (CL) A positive social network for the CF community where members can post blogs, ask questions, maintain a profile, contact others and search members by age, location, sex and relation to CF. It is created by the CF community for the CF community.
- Blooming Rose Foundationhttp://www.bloomingrosefoundation.org is a US-based organization that offers support and social services to families with a new diagnosis of CF.
- Breathe 4 Tomorrow Foundation (B4TF), a US-based organization focused on making life easier one breath at a time for people with CF through assistive services, awareness and research B4TF
- Cystic-L, Cystic-L is both a Listserv and a website dedicated to the exchange of information and support specific to cystic fibrosis. Operating since 1994, Cystic-L serves people with CF and those who share their lives: medical professionals, scientists, researchers, parents, grandparents, spouses, siblings, friends and significant others.
- Canadian Cystic Fibrosis Foundation http://www.cysticfibrosis.ca (CCFF), a Canada-wide health charity, which funds cystic fibrosis research and care. As of February 2011, the Canadian Cystic Fibrosis Foundation will be known as Cystic Fibrosis Canada.
- Cystic Fibrosis FoundationCystic Fibrosis FoundationThe Cystic Fibrosis Foundation is a non-profit organization in the United States established to provide the means to cure and control cystic fibrosis . The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of life for people with the...
(CFF), a US non-profit providing the means to cure and control cystic fibrosis - Cystic Fibrosis Lifestyle Foundation CFLF seeks to create therapies that engage adolescents and young adults with Cystic Fibrosis as active agents in their healthcare physically, psychologically and spiritually, thereby enabling attitudes and lifestyles that create stronger and longer lives for themselves. Founded by Brian Callanan.
- Cystic Fibrosis-Reaching Out Foundation, a US-based network of information and support for people with CF and their families
- Boomer Esiason Foundation, a US-based organization supporting research aimed at finding a cure for cystic fibrosis as well providing education and raising quality of life for people with cystic fibrosis, named after Boomer Esiason, a former NFLNational Football LeagueThe National Football League is the highest level of professional American football in the United States, and is considered the top professional American football league in the world. It was formed by eleven teams in 1920 as the American Professional Football Association, with the league changing...
quarterback, whose son Gunnar has cystic fibrosis. - Lungs for Life Foundation, a US-based organization focused on improving quality of life for people with CF through assistive services, education and research
- Elizabeth Nash Foundation, a US-based organization focused on research, education and patient support, named after scientist Elizabeth Nash
- National Cystic Fibrosis Awareness Committee (NCFAC), a US-based group focused on increased public CF awareness through an annual national Cystic Fibrosis Awareness observance
- Rock CF Foundation, a US-based non profit organization that uses the arts, entertainment, fashion and fitness to increase awareness and raise funds for cystic fibrosis. Founded by Emily Schaller.
- Liv for a Cure, a US-based foundation dedicated to raising money for fight against Cystic Fibrosis.
- Liam Foundation, a non-profit organization dedicated to raising money and enhancing the lives of those with Cystic Fibrosis.
International
- Cystic Fibrosis Worldwide (CFW), an international network concentrated on increasing quality of life and life expectancy for people with cystic fibrosis
- CysticFibrosis.com, an internet information hub with support forums
- CysticLife.org, (CL) A positive social network for the CF community where members can post blogs, ask questions, maintain a profile, contact others and search members by age, location, sex and relation to CF. It is created by the CF community for the CF community.