List of hemophilia organizations
Encyclopedia
This is a list of hemophilia organizations, it includes the numerous organizations around the world which are formed for the support of people with hemophilia, including advocacy and education groups. Hemophilia (or Haemophilia) is a group of hereditary
genetic disorder
s that impair the body's ability to control blood
clotting or coagulation
, which is used to stop bleeding when a blood vessel
is broken.
Heredity
Heredity is the passing of traits to offspring . This is the process by which an offspring cell or organism acquires or becomes predisposed to the characteristics of its parent cell or organism. Through heredity, variations exhibited by individuals can accumulate and cause some species to evolve...
genetic disorder
Genetic disorder
A genetic disorder is an illness caused by abnormalities in genes or chromosomes, especially a condition that is present from before birth. Most genetic disorders are quite rare and affect one person in every several thousands or millions....
s that impair the body's ability to control blood
Blood
Blood is a specialized bodily fluid in animals that delivers necessary substances such as nutrients and oxygen to the cells and transports metabolic waste products away from those same cells....
clotting or coagulation
Coagulation
Coagulation is a complex process by which blood forms clots. It is an important part of hemostasis, the cessation of blood loss from a damaged vessel, wherein a damaged blood vessel wall is covered by a platelet and fibrin-containing clot to stop bleeding and begin repair of the damaged vessel...
, which is used to stop bleeding when a blood vessel
Blood vessel
The blood vessels are the part of the circulatory system that transports blood throughout the body. There are three major types of blood vessels: the arteries, which carry the blood away from the heart; the capillaries, which enable the actual exchange of water and chemicals between the blood and...
is broken.
National and international advocacy and support organizations
International
North American
- Canadian Hemophilia Society
- National Hemophilia Foundation (USA)
- New England Hemophilia Association
- Hemophilia Association of San Diego County
- Hemophilia Foundation of Illinois
- Hemophilia Federation of America
- Federation of Hemophilia of Mexico
Central & South American
European
- * Association of Haemophiliacs and Thalassaemics of Ravenna
- * Association of Haemophiliacs of Veneto
- * Association of Haemophiliacs of Toscana
- * Association of Haemophiliacs of Lazio
- * Association of Haemophiliacs of Friuli-Venezia Giulia
- * Association of Haemophiliacs of Bologna
- * Association of Haemophiliacs of Trento
- * Association of Haemophiliacs of Vicenza
- * Association of Haemophiliacs of Milano
- * Association of Haemophiliacs of Brescia
- * Association of Haemophiliacs of Calabria
- * Association of Haemophiliacs of Bari
- * Association of Haemophiliacs of Campania
- * Association of Haemophiliacs of Piemonte
- * Association of Italian Haemophilia Centres
- UK Haemophilia Society (charity)
- Irish Haemophilia Society
- European Haemophilia Consortium (EHC)
- Romanian Hemophilia Association
- Ukrainian Federation of Hemophilia
- Swedish Hemophilia Society
- Danish Hemophilia Society
- Association of French Hemophiliacs
- German Hemophilia Society (DHG)
- Swiss Hemophilia Society
- Russian Hemophilia Society
- Ukrainian Hemophilia Society
- Federación Española de Hemofilia: Spanish Hemophilia Society
- Austrian Haemophilia Society
- Turkish Haemophilia Society
- Turkish Aegean Haempohilia Society
- Association of Haemophiliacs of Israel (Aleh)
- Haemo Groups : Connecting People With haemophilia And Other Bleeding Disorders
Asian
Pacific
- Haemophilia Foundation Australia (HFA)
- Haemophilia Foundation of New Zealand Inc.
- Indonesian Hemophilia Society
Blood and factor safety groups
- Tainted Blood
- Birchgrove Group self-help group for people with hemophilia and HIV
- Living Stories
- Family Annual Meeting of Hemophiliacs in Ohio
Non-profit organizations
- La Kelley Communications - free books and other educational resources.
- Coalition for Hemophilia B
- Inalex Communications - education and support organization dedicated to meeting the needs of all those living with a bleeding disorder.
- Carol Kasper, M.D. - compilation of free scholarly articles.
For profit organizations
- Hemophilia Village by WyethWyethWyeth, formerly one of the companies owned by American Home Products Corporation , was a pharmaceutical company. The company was based in Madison, New Jersey, USA...
pharmaceuticals - Heamophilia Life - A resource for patients, carers and healthcare professionals by WyethWyethWyeth, formerly one of the companies owned by American Home Products Corporation , was a pharmaceutical company. The company was based in Madison, New Jersey, USA...
pharmaceuticals - HemophiliaMoms.com a Resource for Hemophilia Families by CSL BehringCSL BehringCSL Behring is one of the world's leading plasma protein biotherapeutics companies, specializing in the manufacture of therapies for the treatment of rare and serious diseases...
- Haemophiliacare.co.uk - A resource for patients and caregivers by BaxterBaxter InternationalBaxter International Inc. , is an American health care company with headquarters in Deerfield, Illinois. The company primarily focuses on products to treat hemophilia, kidney disease, immune disorders and other chronic and acute medical conditions...
pharmaceuticals - Haemophilia the official journal of the World Federation of Hemophilia published by John Wiley & SonsJohn Wiley & SonsJohn Wiley & Sons, Inc., also referred to as Wiley, is a global publishing company that specializes in academic publishing and markets its products to professionals and consumers, students and instructors in higher education, and researchers and practitioners in scientific, technical, medical, and...
.